Sunday, January 24, 2016

Announcing the 2016 Annual Community Breakfast to Benefit Taylor Bedini

The Manchester Brotherhood in Action (BIA) proudly announces that our annual community breakfast will benefit the family of Taylor Bedini of Manchester, CT.

Sunday February 28, 2016
9 AM- 12 Noon
Masonic Temple
25 East Center St. Manchester, CT.

Tickets may be purchased in advance or at the door, $5 for adults and $3 for children. Proceeds will help the families offset expenses incurred from medical bills.

The BIA has been in existence since 1987 and has fundraised over $100,000 in charitable contributions to help children with life threatening illnesses. Volunteer members are from UNICO, the two Manchester Knights of Columbus councils, Beth Sholom B’nai Israel Brotherhood, and both Manchester Masonic Lodges. For more information please call John Connolly at (860) 748-5013, email brotherhoodinaction@gmail.com or visit http://brotherhoodinaction.blogspot.com


Taylor Bedini

Taylor is two and a half years old and was diagnosed with a rare genetic condition called Tuberous Sclerosis Complex (TSC) at seven weeks old. TSC causes benign tumors to grow in vital organs of the body and Taylor has tumors in her brain, heart, skin, kidneys, and eyes. TSC is the leading cause of both epilepsy and autism. Due to tumors in Taylor's brain, Taylor has severe epilepsy. After trying many different anti seizure medications and diet therapies, Taylor underwent four brain surgeries this past summer for seizure control. Taylor has significant developmental delays and also struggles with anxiety. She requires frequent medical visits to Boston and also intense early intervention therapies. What comes easy for most, Taylor has to work very hard for but her spirit is pure love and we know she will never give up!